Novel scale to assess severity of idiopathic hypersomnia


  • The study develops and validates the idiopathic hypersomnia severity scale (IIHSS), a patient reported questionnaire which shows to be reliable and valid in quantifying severity of idiopathic hypersomnia (IH) symptoms and differentiate IH with non-IH sleep disorders.

Why this matters

  • IH is characterized by severe excessive daytime sleepiness (EDS) but because the pathophysiology of IH is unknown, the diagnosis is currently made only by excluding other sleep disorders; this specific tool to assess and diagnose IH could support identifying patients and track whether severity of the disease is reduced after treatment.

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